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Social Worker came yesterday and she's cut my care again, I'm now down 2 15 & half hrs of care per week & i'm not meant 2 do food shopping on a take-out call; plus they r only allowing an hour each 4 the house-work & ironing calls. Where do they get off controlling people lifes like that?
I was so mad I wanted 2 smash the Social Worker in the face grrrrrrrrrrrrrrrrrrrrrrrr.
Why do they all av big gobs? They talk, talk, talk and its drives me mad and they love 2 share there problems wiv u; get a life. Do ur job and leave me alone, i'm not interested. i don't want 2 be ur best mate i've got plenty of my own, ur a necessary evil and i av 2 av u.
Hi all,
Just thought u wud like 2 know we've been giving the grant 4 the adaptations 2 be done on the house, we've only waited 10months. They r coming 2 put the door entry system on tomorrow and do the ramp, so i can finally get in & out on my own; then after the new year they r coming 2 do the bathroom; so i might finally feel like the house is my own.
The care is not as good as it could be, but we r getting there; i'm going 2 the print shop 3 days a week after Christmas cos wen i'm there i really feel like i'm doing something worth while. And Aidan says wen i've been there i cum home buzzing.
Anyway just thought i wud let u know.
Love Helen x
Hi all,
Just thought u wud like 2 know we've been giving the grant 4 the adaptations 2 be done on the house, we've only waited 10months. They r coming 2 put the door entry system on tomorrow and do the ramp, so i can finally get in & out on my own; then after the new year they r coming 2 do the bathroom; so i might finally feel like the house is my own.
The care is not as good as it could be, but we r getting there; i'm going 2 the print shop 3 days a week after Christmas cos wen i'm there i really feel like i'm doing something worth while. And Aidan says wen i've been there i cum home buzzing.
Anyway just thought i wud let u know.
Love Helen x
Will we ever understand Social Service, they r taking me off Direct Payments where I have 2 staff who cover the work between them and putting me with an agency who they r paying 4. But you only get 1 staff 2 cover 6 days, plus another 1 2 cover her day off. They want this carer 2 do a an hour here and hour there, is it me or is it double dutch?
Love Helen x
There is some good 2 come out of this, as instead of having the 44hrs per week of care at home; they r just gonna give me 24hrs per week. But they r trying 2 get me in2 some sort of work placements whether paid or voluntary, so this means i'll be out the house more wen Aidan's at work and i will get to know alot more ppl outside these 4 walls. Plus wen i am at home i will have more ppl popping in & out all day instead of just 1 person here 4 along period of time, they r also giving me blocks of time 2 go out and about shopping; so instead of just having 2 days where i'm out the house i cud end up being out 5 day a week. Which I think it will better 4 me, because at the moment i'm lucky if i c 5 ppl a week; and that can't be heathly can it? But i am loosing direct payments, which now i think is a good thing as i can explore new things; and i won't have ppl knowing all mine & Aidan's business.
Thank u 4 reading this & putting up with all my moans.
Love Helen x
Hi Pauline, I have just sent Shirley Laverick this e-mail. She sent us the sheets last week and wants them back next Monday; what the hell was she doing for the previous 2 weeks since your visit? I think we are getting very close to pulling the plug ourselves on Direct Payments so it might be a good idea to start considering alternatives? My mobile number is 07793 964376 if you need me during office hours?
Aidan
Anyway, here is the message I've sent:
Hi Shirley, thank you for sending the sheets showing no receipts submitted to me. Because I am at work 5 days a week and looking after Helen at evenings & weekends it is going to be extremely difficult to submit them back to you by next Monday. Had you sent them sooner after our meeting and not 2 weeks later I might have had a chance of making the deadline but I fear that is now impossible so I would like another week to see what I can do? I will try my best to have them on your desk sometime late next week, but that's the best I can realistically offer?
Yours
Aidan Convery
Just had a letter from social services, saying they want all the reciept in by next Monday; i mean how r u meant do this. Aidan's working, i have 1 carer on holiday and my other carer is only doing 3 hours per; i wish they wud just take direct payment off me and be done with it then maybe i can get on with my life. She was meant 2 send all this stuff 2 me straight after the last meeting, which was 3 weeks ago; wot r they playing at?
Love Helen x
Well the Social worker came and she seemed very nice, and she did seem 2 take alot more notice of wot i was saying, needed & wanted; she also did a review on wot Aidan can & can't do 4 himself & me. So now we just have 2 wait and see wot the outcome of her review is, as soon as i know u will.
The new Social worker's coming tomorrow 2 do the review 4 my hours and care plan, so which us luck on getting more than 29 and a half hrs; i've cum 2 the conclusion if i loose direct payments its not the end of the world. As i've still got Aidan and my friends, at the end of the day thats all that matters; ok i won't have as much choice of who i get 2 do my care. But at least i will still have my independence and i won't have the worry of social services being on my back every month, cos the audits aren't in on time; u might think i'm giving up but i promiss u that i'm not. I wud just rather loose direct payments than Aidan, as this has put alot of stress on both of us.
