Life with care

Apparantly in about 6 weeks i am going 2 loose direct payments all 2gether, the reason they r giving is that i am not spending the money the right way; even though they told me i cud use it 2 pay 4 a carer's 2 come on holiday with me (i mean pay 4 their room instead of their wages), use the money 4 carer's expensives; such as taxis, drinks etc. Plus their wages of course, which is wot i have been doing! The woman who told me all this was here on Tuesday and she denined everything, in front of her boss; i'm so mad! I think the problem is where we live, the council owe so much money that they r just trying 2 blame every1 but themselves. So all in all the carer's i have now r going 2 loose their jobs, and i'm going 2 get angency staff; which will cost them even more.

Love Helen x

Good news the accoutant has done the audit & sent them off 2 Social Services, I've also got a copy of everything; so here's hoping that will shut them up 4 a bit. But knowing them they be something wrong with it, at least they can't stop my direct payments now even if it is right or wrong; might get my life back 2 normal now.

Thanks 4 ur surpport!

Love Helen x

The accountant seems 2 be doing my paper-work 2day, so all being well things r going my way; please please!

Love Helen x

The social workers boss came on Friday, and the good news is I've got rid of that social worker and they r going 2 give me a new 1; plus they r going 2 review my hours and give Aidan and myself an Occupational Therapist assesement. The other news is I cud still loose my Direct Payments, this is due 2 my accountant not doing the audits on time; she has until the 1st of September 2 get everything in. I wudn't care I send her all the paper-work of the hrs and how much ppl get paid, all she has 2 do is conpare it 2 the bank statement and tell them where the moneys gone. So hopefully she will sort it and things will go back 2 normal.

Please pray or keep ur fingers crossed.

Love Helen x

Hi, i have my social worker boss coming 2 c us on Friday afternoon; this is 2 go though the changes of my care package. But i think it will go back 2 the way it was, as i'm still getting the money 4 44hrs and this was meant 2 change 2 29 and a half last week; i think the social worker has been over ruled. Plus our conplaint against the social workers attitude is being looked in2, as our letter has gone 2 the conplaints department; so please keep ur fingers crossed 4 me & i will let u know the out come.

Love Helen x

On Saturday i got a letter from the Social Worker, saying as from this Monday just gone my hrs were cut 2 29.5hrs and if the paper-work 4 my direct payments wasn't on their desk by next Monday; they wud stop my direct payments money. But un-beknowing 2 me my accountent phoned social services on Friday 2 ask if she cud have til the end of August 2 get the paper-work in, and they said yes; so wen i went 2 c her yesterday she said she had it all sorted & they cudn't stop my DP money until then. Which won't happen. Aidan also sent a letter 2 the head of SS, so we r just waiting 4 the out come of that; but the social worker is holiday now. So with a bit of luck he will be taking off the case, plus with Aidan having a full-time job now; they r going 2 have 2 re-assess me. Isn't that a shame?

Love Helen x

How can he do this???

We had a visit from the Social Worker yesterday, and he want to drop my care hours from 44 to 29 and a half.

I need help with all personal task, cleaning, shopping, cooking, makinh phone calls etc. Plus as I'm getting older and my disabilities getting worse, so I need more help than ever.

Here's the reason he give, Aidan is here; and is able 2 look after me which is not true. As Aidan has very poor balance, he has enough trouble looking after himself; we manage wen we go away but thats only 4 a few days at a time.
He also said I don't need any1 here 2 take me out, cos Aidan can do; but i might not want Aidan 2 come and he might not want 2.
My knee locked a few weeks ago, so now i can't even take myself 2 the toilet; but the social worker just dismissed that.
Aidan ended up throwing him out of the house, which probably didn't help; but he was so mad.

Any advice or support wud be great.

Love Helen x

Aidan went 2 work this morning and Lindy phoned asking if she cud take Wednesday off as a holiday as the plaster in coming 2 do her roof; but me being caught of guard I just said yes. But then I said why don't u just swap the day 4 another day then u won't loose ur holiday & u still get paid, she wasn't willing 2 that; so now I'm left with another day 2 cover.

Is it me or is she taking the micky?

Told you that i had a carer off sick for 3 weeks, well now i have another one off; she did say she wud come in. But like i said 2 her, u can't really cum in with a broken foot; can u? It's hard enough looking after urself neva mind any1 else, lucky Isabel 1 of the 2 good carers said she wud cover this weekend; thought about asking Lindy but thought its really not worth the hassle and the mood swings. So it's all fun and games here.

I've got this carer called Lindi, she's been with me about four years now; she did leave once as the rota wasn't going her way. But she soon came back when she realized that she wouldn't get as good hours and pay anywhere else as she does here.
She has three growing up kids, but she still goes on about them like they r still at school; the youngest ones 18.
Up until last year she was married for over 30years, but sadly he died last year from a sudden heart attack; which was very sad as he was a very loving and caring man. When he died I went out of my way 2 help her, gave her all the time off she needed with full pay; my husband Aidan even went to the funeral 2 show our support. I would of gone but the weather was so bad I would of been soaking though, I did send flowers ect to show my support.
At the mo she's really doing my head in and I mean big time, I feel like I can't do anymore as she's pushing me away and I feel she's taking the micky when she comes to work; such as wen she comes in she will only do wot she needs too and that's it or she will do things that really don't need doing. She won't work any felxible hours, only 3 full days (9 til 4 or 3) and no weekends; leaving the rest of the shifts to the other 2 carer's. Meaning they have 5 tea times to cover & every weekend, as I need help with everything. For the past 3 weeks I've had 1 of them on the sick; so i've had to struggle with 1 carer covering all these other shifts and she has 3 kids under 10. Lindi didn't even offer to help, but she expects them 2 cover her when she's off.
Plus now we are moving to a place 3 miles, which is abit out of the way; but it is a 2 bedroom so we would be stupid not to take it as the place we r in now is far to small.
Anyway Lindi is going out of her way to try & put us off the idea, by saying we r going to be to far away from things; but we r here. Plus is it not upto us to decided whats right for us, I've spent the whole of my life pleasing other people and I'm not prepared to do it anymore. I'm also finding it hard when she's around Aidan, as she's talking to him like she his wife.

Any clues, what I can do?

can really be the worst thing about being disabled.

My reasons go like this, carer's always expect you to be happy even if you do feel like s***.

Most of them what to be your best mate, even though when they go away they don't give you a second thought until they next come in.

They come in and tell you all there problems, not giving a second thought that you could have problems of your own.

They come in and treat the house like their own, then when they go you can't find anything. Some of them even think they have the right to eat your food or use the phone without asking or paying for it.

Some of them even try & tell you how to run your own life, I mean wot gives them the right to do this?

That's all for now, hope you enjoy reading this.